Believe it or not, this adventure is coming up on a year! Tomorrow, I have many of those fun follow up tests that I mentioned before - CT scan, lung function, EKG and the dreaded echo cardiogram. Later this month, I have another broncoscopy. All of this is because the clinical trial is essentially coming to an end.
So, the big question is - what's next? I've been feeling great and I daresay more than one person has told me that I look healthier - healthier than what, I'm not sure, but I'll take it. The plan is to take me off the medication for the evaluation phase of the trial. You know, the same medication that has left me feeling better and, according to others, looking better. So, for now, my concern is the unknown - what if I regress? Will they have to put me on one of those other more toxic medications? Just a heads up - if you read about a crazy woman who ransacked all of UCLA for their Gleevec supply and was last seen running toward the beach - uh....you never heard of her.
More to report after the upcoming tests!
4 comments:
I love you hunny! Thanks for updating this.... I wasn't sure how you were doing. ;) xoxo
Hey Kim,
Glad to hear that you're looking healthier :) That WOULD be a funny thing to hear... Can you wait to go off the gleevec until the wine tour? So that we make sure that you are feeling well. That whole concept of going off a drug that is making you feel better would make me a bit nervous too. Is Gleevec contraindicated for anyone that drinks wine? Perhaps you could stock pile some and sneak it when it's gone. Anyway, I am looking foward to catching up with you and Matt in a few weeks. Did you know I moved to Texas? Yes, very hot here... record breaking heat- go figure. I'll fill you in on the details later but just wanted to let you know that I was thinking of you.
Take care and see you soon. Kara
Hunny bloggins?
Which is not to be confused with the guy who wrote "Your Mama Don't Dance" and "Danger Zone".
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